Fibrolamellar News

Stay up-to-date about fibrolamellar by checking out the most current articles, in the general press and in the scientific literature, curated by a group of fibrolamellar patients and parents working together to find a cure. More

Community Forum

An organized, searchable forum for talking to -- and learning from -- fellow fibrolamellar patients, family members and caregivers. We're sharing our stories, and trading tips about surgeries, nutrition, hospitals and more. Join us! More

Future Goals

Now that we have officially launched the Registry, our next goal is to have every single member of the fibrolamellar community participate in it. That's because the more people who join, and the more information they share, the more useful the Registry will be to the doctors and scientists studying this disease. More