The first step is to log in, and click on your profile. You'll see a pop up. Fourth box down says Authorization, as shown below:
This feature allows users to authorize others to help with their account, like the support staff at the Fibrolamellar Registry, or a friend or family member! Once on the authorization screen, have your sibling (or other family member/friend) add a new authorization.
They’ll be asked to provide your name and email...
…And to confirm your authorization settings. By default, the system is set to allow you to assist your sibling (or other friend/family member) with editing and/or entering profile information (name, date of birth, living/deceased status, and location), and health information and documents (survey data). It is not set to allow you to assist them with privacy settings for sharing of data – though if you will be the primary manager of your sibling or other friend/family member’s account, they may want to authorize you to assist with that after all. Checking the different options on and off will determine what you are allowed to assist with.
Lastly, your sibling or friend/family member will be asked to confirm whether you can respond to notifications on their behalf. (Note: Notifications refer to requests to export survey data or view contact information, if someone has indicated they would like a researcher to ask first for this information in their privacy settings.) Unchecking the box next to your name will turn off your ability to assist with notifications.
Once authorization has been added, you’ll get an email to open your account with Private Access, the technology provider for the registry. That’s it!