Please carefully review these Terms and Conditions of Use and any policies referenced in it. By using the Fibrolamellar Registry Inc. (FRI), you agree to be bound by the Terms of Conditions of Use.

Your use of this site is conditioned upon your continued acceptance of and compliance with the Terms and Conditions of Use below. Please read these Terms and Conditions of Use carefully, as use of the site constitutes acceptance of them. If you do not agree to abide by all the provisions contained in this Terms and Conditions of Use, you must not use or access The Fibrolamellar Registry, Inc.

The Fibrolamellar Registry Inc, reserves the right to change the Terms and Conditions of Use any time and to modify any features at any time, and if you continue to use The Fibrolamellar Registry Inc., you agree to be bound by such changes. You must consult the most recent version of these Terms and Conditions of Use each time you view this site. Any changes to this Terms and Conditions of Use (including the policies) shall become a part of this Terms and Conditions of Use upon publication and shall apply as soon as they are posted. Any new features or functionality that augment or enhance the Fibrolamellar Registry Inc. shall be subject to this Terms of Use upon activation.

The Fibrolamellar Registry Inc. makes this site available free of charge to its users as an informational and educational service. By using this site, you agree to the following Terms and Conditions of Use. If you do not agree to all of these Terms and Conditions of Use, please do not use the site.

This site does not provide medical advice, diagnosis, or treatment.

All content made available on or through the site is for informational and educational purposes only. The Fibrolamellar Registry Inc. is not a health care provider and is no substitute for treatment by a physician or other health care provider. The information and links are not intended to be substitutes for professional medical advice, diagnosis or treatment. The content is not intended as and must not be relied upon as medical advice or for diagnosis or treatment purposes. The content may be inaccurate and may not be up to date. Always seek the advice of your personal oncologist, physician or other qualified health care professional for any questions you may have regarding a medical condition. Do not disregard or delay in seeking professional medical advice, diagnosis, or treatment because of anything you may read on the site.

The Fibrolamellar Registry Inc. does not endorse any specific physicians, products or treatments even though they may be mentioned on this site or link. Use of this site does not constitute a physician-patient relationship under any circumstances, even if information is provided by a physician.

PLEASE READ THESE TERMS AND CONDITIONS BEFORE USING THIS WEBSITE

Please carefully review these Terms and Conditions of Use and any policies referenced in it. By using the Fibrolamellar Registry Inc. (FRI), you agree to be bound by the Terms of Conditions of Use.

Your use of this site is conditioned upon your continued acceptance of and compliance with the Terms and Conditions of Use below. Please read these Terms and Conditions of Use carefully, as use of the site constitutes acceptance of them. If you do not agree to abide by all the provisions contained in this Terms and Conditions of Use, you must not use or access The Fibrolamellar Registry, Inc..

The Fibrolamellar Registry Inc. makes this site available free of charge to its users as an informational and educational service. By using this site, you agree to the following Terms and Conditions of Use. If you do not agree to all of these Terms and Conditions of Use, please do not use the site.

This site does not provide medical advice, diagnosis, or treatment.

DISCLAIMER OF LIABILITY

Fibrolamellar Registry Inc. (FRI) and this website do not dispense medical advice or make any medical recommendations. FRI takes great care to assure that information on this website is current but cannot guarantee the reliability or accuracy of the information provided, nor does it endorse any content, viewpoints, products, specific physicians, treatments or services linked from or mentioned by this website. FRI shall not be held liable for any losses caused by reliance on the accuracy, reliability or timeliness of such information. Portions of such information may be incorrect or not current. Any person or entity that relies on any information obtained from this website does so at their own risk.

You acknowledge that the information on this Web site is provided “as is” for general information only. This Web site does not offer medical advice or recommendations and individuals should not rely on the information posted on this Web site as a substitute for consultations with qualified health care professionals who are familiar with individual medical conditions and needs. The Fibrolamellar Registry Inc. strongly recommends that care and treatment decisions related to fibrolamellar and any other medical condition be made in consultation with a patient’s physician or other qualified health care professionals who are familiar with the individual’s specific health situation. Use of this site does not constitute a physician-patient relationship under any circumstances, even if information is provided by a physician.

You agree that you will indemnify, defend and hold harmless the Fibrolamellar Registry Inc. and its officers, directors, agents, employees, and volunteers from all claims arising out of or related to your access or use of, or your inability to access or use, this Web site or the information, services, products or messages contained in this Web site or other Web sites to which it is linked, including but not limited to claims that you have found something you have heard, viewed or downloaded from this Web site or another Web site to which it is linked to be obscene, offensive, defamatory, or infringing upon your intellectual property rights. In no event will the Fibrolamellar Registry Inc. or the contributors of information to this Web site be liable to you or anyone else for any decision made or action taken by you in reliance on such information or for any consequential, special or similar damages, even if advised of the possibility of such damages.

YOU HEREBY RELEASE AND FOREVER WAIVE ANY AND ALL CLAIMS YOU MAY HAVE AGAINST THE FIBROLAMELLAR REGISTRY INC., ITS OFFICERS, DIRECTORS, AGENTS, EMPLOYEES, AND VOLUNTEERS FOR LOSSES OR DAMAGES YOU SUSTAIN IN CONNECTION WITH YOUR USE OF THIS WEB SITE.

THE USE OF THE SITE AND THE CONTENT IS AT YOUR OWN RISK. THE FIBROLAMELLAR REGISTRY INC, THEIR RESPECTIVE MEMBERS, DIRECTORS, OFFICERS, MANAGERS, EMPLOYEES, AND VOLUNTEERS, CONTRIBUTORS TO THIS SITE ARE NOT LIABLE FOR ANY DAMAGES IN ANY WAY RELATED TO USE OF THE FIBROLAMELLAR REGISTRY, AND SHALL NOT BE LIABLE FOR ANY DECISION OR ACTION TAKEN BY YOU IN RELIANCE ON THE SITE OR THE CONTENT, OR FOR ANY DAMAGES (INCLUDING WITHOUT LIMITATION ANY INDIRECT, INCIDENTAL, SPECIAL, OR CONSEQUENTIAL DAMAGES), PERSONAL INJURY, OR DEATH RESULTING FROM THE USE OF OR INABILITY TO USE THE SITE OR THE CONTENT, WHETHER OR NOT ANY OF THEM HAS BEEN ADVISED OF THE POSSIBILITY OF SUCH DAMAGES, PERSONAL INJURY, OR DEATH, AND REGARDLESS OF THE FORM OF CLAIM OR ACTION, WHETHER BASED ON THEORIES OF WARRANTY, CONTRACT, TORT, OR ANY OTHER LEGAL THEORY. YOU ACKNOWLEDGE THAT THE FIBROLAMELLAR REGISTRY INC. PROVIDES THE SITE AND THE CONTENT ON AN “AS-IS” BASIS. TO THE FULLEST EXTENT PERMITTED BY LAW, THE FIBROLAMELLAR REGISTRY INC. DISCLAIMS ALL REPRESENTATIONS AND WARRANTIES, EXPRESS OR IMPLIED, STATUTORY OR OTHERWISE, INCLUDING BUT NOT LIMITED TO THE IMPLIED WARRANTIES OF MERCHANTABILITY, NON-INFRINGEMENT AND FITNESS FOR A PARTICULAR PURPOSE, AND ANY REPRESENTATIONS OR WARRANTIES OF ACCURACY, COMPLETENESS, CURRENCY, TIMELINESS, USEFULNESS, AVAILABILITY, OR RELIABILITY. THE FIBROLAMELLAR REGISTRY INC. DOES NOT MAKE ANY REPRESENTATION OR WARRANTY REGARDING SATISFACTION OF GOVERNMENTAL REGULATIONS REQUIRING DISCLOSURE OF INFORMATION REGARDING PRESCRIPTION DRUG PRODUCTS, MEDICAL DEVICES OR ANY MEDICAL PROCEDURES, OR REGARDING THE APPROVAL OR COMPLIANCE OF ANY SOFTWARE WITH RESPECT TO THE CONTENT ON THE SITE. THE FIBROLAMELLAR REGSISTRY ALSO DOES NOT REPRESENT OR WARRANT THAT THE SITE OR CONTENT WILL BE FREE OF INFECTIONS OR VIRUSES, WORMS, TROJAN HORSES, OR OTHER CODE WITH DESTRUCTIVE PROPERTIES.

USE OF THE FIBROLAMELLAR REGISTRY WEBSITE

The Fibrolamellar Registry Inc. reserves the right to or terminate your access to and use of the site and the content for any reason and without any liability or further obligation to you, including without limitation if the Fibrolamellar Registry Inc. believes that you have violated these Terms and Conditions of Use or acted contrary to their spirit.

Information from Children: The Fibrolamellar Registry does not direct its Web site to children under thirteen (13) years of age. Individuals under eighteen (18) should consult with their parent(s) or guardian(s) about the use of this Website.

This Web site (excluding linked sites) is controlled by the Fibrolamellar Registry Inc., which is headquartered in the State of New York, United States of America. It can be accessed from all 50 states, as well as from other countries around the world. As each of these places has laws that may differ from those of New York, by accessing this Web site both you and the Fibrolamellar Registry Inc. agree that the statutes and laws of the State of New York, without regard to conflicts of laws principles thereof, will apply to all matters arising from or relating to use of this Web site. You and the Fibrolamellar Registry Inc. also agree and hereby submit to the exclusive personal jurisdiction and venue of New York County, New York and the United States District Court for the District of New York with respect to such matters. The Fibrolamellar Registry Inc. makes no representation that materials on the Web site are appropriate or available for use in other locations, and accessing them from territories where their contents are illegal is prohibited. Those who choose to access this Web site from other locations do so on their own initiative and are responsible for compliance with local laws.

Any individual who uses the Fibrolamellar Registry website in any way contrary to these Terms and Conditions of Use will have his or her access to the website terminated. If you become aware of any such violation, please contact the Fibrolamellar Registry administrator at: fibroregistry@gmail.com

LINKS FROM THIS WEB SITE

The Fibrolamellar Registry Inc. makes no representation, warranty or endorsement, express or implied, as to any of the information, services, products or messages on any other Web sites which may be accessed through a hyperlink on this Web site. In particular, these links are provided for convenience of reference only and are not intended as an endorsement by the Fibrolamellar Registry Inc. of the organization or individual operating the Web site or a warranty or endorsement of any type regarding the Web site or the information, services, products or messages posted on or available from such Web site.

LINKING FROM OTHER WEB SITES

The Fibrolamellar Registry Inc. may grant the owner of a Web site permission to use a hyperlink to this Web site from its Web site, provided: (a) any such link must clearly be marked “The Fibrolamellar Registry Inc.”; (b) the appearance, position and other aspects of either the link or the host Web site may not be such as to damage or dilute the goodwill associated with the Fibrolamellar Registry Inc.’s name and trademarks; (c) the appearance, position and other aspects of either the link or the host Web site may not create the false appearance that any other entity is associated with or sponsored by the Fibrolamellar Registry Inc.; and (d) the link, when activated by a user, must display this Web site full-screen and not with a “frame” on the linked Web site. The owner of any Web site with a hyperlink to this Web site agrees to the foregoing terms and agrees to delete any such link upon notice from the Fibrolamellar Registry Inc. that such permission has been revoked, which notice may be given at any time and for any reason.

The Fibrolamellar Registry Inc. is not responsible for the information or materials contained on Web sites linking to this Web site. Links to this Web site are provided for convenience of reference only and are not intended as an endorsement by The Fibrolamellar Registry of the organization or individual operating the host Web site or a warranty of any type regarding the host Web site or the information on the host Web site. You agree that you will not seek to hold the Fibrolamellar Registry responsible for any material related to those websites.

COPYRIGHT AND TRADEMARK

Unless otherwise indicated, all information contained on this Web site, such as text, graphics, logos, button icons, images, audio and video clips, is copyrighted by and proprietary to the Fibrolamellar Registry Inc. The content displayed on any page of this Web site may be used for personal and noncommercial uses which do not harm the reputation of the Fibrolamellar Registry Inc, provided that the user does not remove any trademarks, copyright and any other notice contained in such content. The name and mark, the Fibrolamellar Registry and its attendant logos and taglines, are trademarks of the Fibrolamellar Registry Inc. and may not be used or reproduced without its prior written consent.

You may not upload or transmit to the site or the Fibrolamellar Registry Inc. any information that infringes or violates the rights of any third party. If you believe that any content accessible on the site infringes your copyright, you may request removal of that content in writing. Please see 17 U.S.C. 512(c)(3) for details on how to submit such a request. Please submit any requests for removal or any other requests to: fibroregistry@gmail.com

© Fibrolamellar Registry, Inc., a registered 501(c)(3) tax-exempt non-profit organization. This site does not provide medical advice, diagnosis or treatment.