What Personally Identifiable Information is Collected
The Fibrolamellar Registry members that register for www.fibroregistry.org and individuals that sign up to receive Fibrolamellar Registry e-communications voluntarily provide us with contact information (such as name and e-mail address). We may use this information for specific, limited purposes. You may always “opt out,” either now or at any time in the future, if you do not wish to receive our messages.
www.fibroregistry.org does not use any “cookie” messages.
How Your Information May Be Used
We use your personal information to provide you with personalized service; to send e-mail alerts to you; to answer your requests; to process your membership application; etc. You may choose to opt out at any time, which will cease all communications from us. We may also use your information to track visitor of our website. This lets us see which of our features are the most popular so we can better serve our users’ needs. It also lets us provide aggregate data about our traffic (not identifying you personally, but showing how many visitors used which features, for example) to outside parties.
The Fibrolamellar Registry does not provide, sell, or rent email addresses to anyone outside the organization.
www.fibroregistry.org includes links to external websites. These links do not fall under the www.fibroregistry.org domain, and the The Fibrolamellar Registry is not responsible for the privacy practices or the content of external websites. Your use of any linked website is solely at your own risk.
While the Fibrolamellar Registry exercises all due caution to protect your privacy, we will not be held responsible for parties who illeglaly access any information obtained through the website or who intercept or access transmissions or private communications.