Your Privacy

The Fibrolamellar Registry recognizes your trust and fully respects your privacy. We will not sell, share or trade your personal information (name, address, email address) to any third party without your permission. However, if required by law or legal process to provide information about a member or donor we shall comply. If you have made a donation or indicated that you would like to receive information from the Fibrolamellar Registry, we may send you occasional updates via e-mail or mail a newsletter to your home. If you have any questions regarding our privacy practices, please contact usThe Fibrolamellar Registry places a high priority on protecting your privacy. This privacy policy was created in order to demonstrate The Fibrolamellar Registry’s firm commitment to the privacy of our members and website users. This policy explains what types of information is collected by the The Fibrolamellar Registry website,, and how this information is used.

What Personally Identifiable Information is Collected
The Fibrolamellar Registry members that register for and individuals that sign up to receive Fibrolamellar Registry e-communications voluntarily provide us with contact information (such as name and e-mail address). We may use this information for specific, limited purposes. You may always “opt out,” either now or at any time in the future, if you do not wish to receive our messages.

Cookies does not use any “cookie” messages.

How Your Information May Be Used

We use your personal information to provide you with personalized service; to send e-mail alerts to you; to answer your requests; to process your membership application; etc. You may choose to opt out at any time, which will cease all communications from us. We may also use your information to track visitor of our website. This lets us see which of our features are the most popular so we can better serve our users’ needs. It also lets us provide aggregate data about our traffic (not identifying you personally, but showing how many visitors used which features, for example) to outside parties.

Email Privacy
The Fibrolamellar Registry does not provide, sell, or rent email addresses to anyone outside the organization.

External Links includes links to external websites. These links do not fall under the domain, and the The Fibrolamellar Registry is not responsible for the privacy practices or the content of external websites. Your use of any linked website is solely at your own risk.

While the Fibrolamellar Registry exercises all due caution to protect your privacy, we will not be held responsible for parties who illeglaly access any information obtained through the website or who intercept or access transmissions or private communications.

We may amend this privacy policy from time to time; please review it periodically. We maintain the option to modify this privacy at any time by electronic notice posted on our website. Your continued use of our website after the date that such notices are posted will be deemed to be your agreement to the changed terms.

By visiting or using The Fibrolamellar Registry, you agree to be bound by the terms and conditions of this Privacy Policy.