Registry-Inspired Fibrolamellar Research
Research In Progress From Our Data
Sharing your medical journey as a member of the Fibrolamellar Registry has real-world impact. Here are some of the studies that have come about using the Registry’s dataset.
Immune Checkpoint Inhibitors Study
Oncologists at Johns Hopkins School of Medicine approached the Fibrolamellar Registry, asking for help learning more from our community about if and how a new class of drugs is working in fibrolamellar patients. They've reviewed the records to determine whether to recommend a new clinical trial or treatment method.
Hyperammonia and Fibrolamellar Study
Researchers in Brazil and the United States are working together, using Registry data, to analyze how to prevent hyperammonia in patients, which can have dire consequences.
Scientists at New Mexico State University will be examining and quantifying pre-mortality events in hopes of extending survival times.
Your Study Here
Be the next scientist to make progress on fibrolamellar. It's easy to apply.