Volunteer to
Fight Fibrolamellar

Frustrated by the dearth of knowledge of and treatments for fibrolamellar?

So are we. You can be the next hero to a fibrolamellar patient! Here’s how:

Donate Your Time, Tissue or Funds

The Fibrolamellar Registry is seeking motivated patients, parents, siblings, friends, spouses, caregivers — anyone who wants to do good for a great cause and have hands-on impact on fibrolamellar research, including those with no science backgrounds. The FightFibrolamellar campaign is looking for patients, their families or friends to assist lab researchers as they work to cure this disease. If you are at least 16 years old and have a minimum of three weeks available, please contact them to help find the lab that’s right for you.

The Registry is partners with the Fibrolamellar Tissue Repository at the Rockefeller University which seeks fibrolamellar patients’ tissue samples, obtained during surgery, to pursue its research. It is also in need of blood samples from all fibrolamellar patients. When you participate in the Fibrolamellar Registry you have the option of allowing both your Registry data and your donated tissue to be combined to give researchers unparalleled amount of information to assist their studies. Please click here to contact the scientists at the Repository if you would like to donate tissue or blood.

We welcome your financial donations, large and small.  Click here to go to our Paypal page now.

Your gift, in any amount you choose, will be used to support the Fibrolamellar Registry as we work toward earlier diagnoses, better treatments and, one day, a cure for this rare, poorly understood liver cancer that affects our most vulnerable: children, teens and young adults.
Once you have completed your donation, you will be taken to our Tribute Gifts page where you will be able to send a card to honor or remember a friend, family member or loved one. We will snail mail an acknowledgement card to your designated recipient(s), letting them know of your gift. (The amount of the gift is never disclosed.)
You may also mail a check to: Fibrolamellar Registry, 325 East 84th St., Ste. 5B, New York, NY 10028  If you wish, please provide the name of the person for whom you are making the tribute and the name and mailing address of anyone whom who you want to receive an acknowledgment card.
Upon your donation, you will receive a gift receipt for income tax purposes, in one to three weeks.
Click here to donate now.
The Fibrolamellar Registry is a registered 501(c)(3) non-profit organization. You will receive a gift receipt for income tax purposes.